The National Strategic Plan for Rare Diseases of Iran Approved

The National Strategic Plan for Rare Diseases of Iran (NSPRDI) was approved with the support of the Health Commission of the Islamic Consultative Assembly at the Supreme Council of Health and Food Security led by Dr. Saeed Namaki, the Minister of Health and Medical Education (MHMS).

 The NSPRDI was collaboratively developed by the Rare Diseases Foundation of Iran (RADOIR), Tehran University of Medical Sciences (TUMS), national and international researchers, and also with the immense support of Prof. Mohammad Ali Mohseni Bandapi, a member of the Parliamentary Health Commission (MPHC) as well as more than 70 members of Iranian parliament and was approved by the Supreme Council for Health and Food Security led by Dr. Saeed Namaki (MHMS).

The main vision and mission of this national strategic plan is prenatal screening to ensure prompt diagnosis and prevention of birth defects caused by rare genetic conditions/diseases and to deliver the relevant pharmaceutical and medical care to this special population of this country in a timely manner.

12:36 - 2021/01/03  /  18187  /  156

 


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